Showing posts with label the george washington university. Show all posts
Showing posts with label the george washington university. Show all posts

Thursday, December 17, 2015

"Cultural Territories of Disability" with Simi Linton


"What passes for disability representation in the arts 
is instead mostly fantasy about us."

Simi Linton
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Disability and Democracy

On December 3rd, 2015, Simi Linton spoke to a collection of several classes, as well as faculty and students in GWU's Crip/Queer Studies contingent. Her remarks, which she entitled, "Cultural Territories of Disability," took on the form of a seminar style dialog with the audience. Over the hour and a half, she examined the history and current contexts of disability in the public, the role of disability arts in democracy, and engaged students with a screening of some of her films that illustrate the lived affects art has on people with a diversity of embodiments. Professor David Mitchell introduced Linton and explained that her work has already been an influential part of his course which was now in its final weeks. Indeed, the event was a special treat for students who were able to receive a clarification and continuation of thoughts they had been stewing on all semester.

Throughout her talk, Linton expanded on what she meant by "bringing disability activism into the democracy through the arts." Turning back to the audience, she opened up the questions to the audience, "what is democracy?" and, "how does art influence disabling systems of power?" Various responses were offered, ranging from the formal center of government, major corporations, the media, and the micro-encounters of daily life. Democracy as an idea is then more than a mode of ruling a nation but a way of looking at society as made up of micro-communities of power that are constantly in flux. In such a view, it is not enough to simply pass legislation or elect representatives, but transform needs to occur along massively distributed and systematic channels. It is along these channels that power flows, in contrast to other theories of social interaction that put a greater emphasis on centers or organs of authority. As much as disability justice needs to penetrate these bastions of rulership in order to effect change, it also needs to effect the network of ideas, emotions, and daily acts that are not localizable to one place or person. Power exists between people, not merely in them.


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The Cultural Authority of Disability

At the start of her talk, Linton explained how her first book came out of a dinner at a restaurant with the desire to portray disability as an active mode of embodying the self and society rather than a passive state. As a discerning period, Linton decided that working in the academy would put too many limitations on her time, work, and conversations. In the end, she decided to leave the ivory tower of teaching, "to bring disability into the public" and use the arts to reorient societal orientations, "the cultural authority of disability." Disability justice requires mass participation in order to transform the physical and societal environments that disable those with non-normative embodiments. As Linton brought the audience into the conversation on disability culture, she spurred competition between classes in order to get a diversity of vantage points and to push the attending classes to see crip cultural authority as a good worth fighting to develop. 

At another stopping point, Linton and Mitchell discussed disability justice as working to move beyond the compulsory struggle "to be like the able-bodied" and to move instead into offering distinct vantages and goods as different kinds of crip bodies. This form of disability studies effectively is about a change of perspective, turning from exterior social view of disability to seeing the self and society from the disabled vantage. This "vantage," Linton stresses, combines a better understanding of crip knowledge (i.e. vantage points, the places and modes of how people perceive) and of crip power (i.e. advantage, the areas in which crip embodiments are better attuned to the world; perhaps suggestion a new way of conceiving of the "dis-advantage" of "dis-ability"). An implicit part of this shift in crip culture and justice is the movement of disability from being an object of study for those in the center of cultural authority to placing disability in the center of things then reviewing and reorienting from that vantage.


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Architecture of Exclusion 

Over the years disability representation and accommodations have increased under the banner of "multiculturalism," admits Linton, but observes that people often mistake and undermine what it means. In regards to the current state of multiculturalism in arts and the democracy, especially as it relates to disability, Linton notes, "more people know what multiculturalism is against rather than what it is for." As with feminism being portrayed as mere antagonism to men and masculinity, people (especially people of privilege) see multiculturalism as a demanding force (much like a whining child) to which they must continually make concessions. By this view, diversity is that ever present nag that invades the media and communities of straight, white ablebodied cisgender men and takes away things from them bit by bit. They frustratedly ask, "when is it enough for you people?" Yet this attitude shows that despite the little accommodations made, those people in power have not changed their sense of values. Disability and diversity (whether its women, people of color, queers, or trans people) remain groups of "others" who are less and have less than them. This vantage refuses to see diversity itself as a strength or the gifts that diverse peoples possess. But this concession of ideology would require the admission that for all their power, people of privilege are actually less able, less knowing, less rich than those over which they lord their whiteness or normativity. Once the admission is made, "their difference from me has value, authority, and power," suddenly disability and diversity becomes something to be desired and welcomed, not merely accommodated.

The need for the transformation of democracy is evident then not only in the big injustice of government but in the "micro-aggressions" that occur in every day life. Working with a term that has received some use and misunderstanding, Linton defines and nuances meaning of micro-aggressions as the daily acts of ableism that occur despite major social victories. Often, in fact, the "backlash" after concessions are finally made (however small) to disability justice can drastically increase in number and forms after a few major concessions. One example that Linton called on to illustrate this is what she calls, "the Architecture of Exclusion." She defines this as architecture that reflects a dismissal, devaluing, or even frustration with disability as a result of unwillingly making the concessions to design, such as ramps or automatic doors. In one case, documented in one of her films, the ramp of an art center was so hidden that it not only took her away and out of sight from the public (as if she in her wheelchair was a problem for the building's aesthetic) but was covered and narrow so that she felt isolated and confined. The ramp did not allow for her to travel alongside friends and thus cut off her ability to converse with others who used the ramp with her. Evidently, the ramp was not built for the pleasure of people in wheel chairs and indeed wanted them out of the way as much as possible. The cumulative effect was that she felt alienated and marginalized by the building's unwelcoming layout at the same moments concessions are being made.

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Other Crip/Queer Events at GWU




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As a writer, consultant and public speaker, Simi Linton is one of America’s foremost experts on disability and the arts. She works with a diverse range of cultural organizations – theatre companies, film and television producers, museums, non-profit arts companies, universities, and other groups across the country – to improve and increase the way disability is represented and depicted in all art forms.

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Monday, October 26, 2015

"An Anthropology of Psychosocial Disability" with Karen Nakamura


“The related concepts of 
“giving up hope” and “a life in decline” 
were the most difficult for me to grasp. 
I still struggle to view them positively."

Karen Nakamura
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Beyond IRBs: Anthropology & Disability Studies

On October 22nd, 2015, Karen Nakamura spoke on "Cultural Madness: Notes on an Anthropology of Psychosocial Disability" at the Center of Media and Public Affairs at the George Washington University. The event was co-sponsored by the English Department's Crip/Queer Studies programming and Disability Student Services. David Mitchell introduced Nakamura, noting her recent work, Disability of the Soul, and her upcoming project on Transgender in Japanese Culture. In front of undergraduates, graduates, and faculty, Nakamura opened with a call for more disability studies within the field of Anthropology, especially projects focused outside the United States. The speaker subsequently discussed her work with Bathel, an intentional Christian community in Japan that supports a wide variety of peoples with psychosocial embodiments, including schizophrenia and depression. While Nakamura ended up writing a book on her research, she first approached the group as a documentarian, living with the subjects of the film for an extended period of time in order to get to know them as distinct persons as she filmed and edited the work.

The choice of film-making came as a creative response to problems with restrictive ethics board guidelines. Such International Review Boards were developed for the medical sciences to police practices of human experimentation, including electro-therapy and the administration of experimental drugs. Since then, IRBs have been expanded in the social sciences, setting tight restrictions on the methodologies for interviewing human subjects. In addition to making data collection more difficult, IRBs have been criticized for protecting research institutions and universities from lawsuits rather than assuring the safety of interview subjects. As a result, vulnerable populations are often less willing to agree to interviews because they fear signing away their rights in perfunctory consent forms. In answer to these problems, Nakamura turned to the creative arts and humanities to further her work with and on disability communities. While sociological articles require IRB regulations a film does not but it is regarded as art not research, notes Nakamura. The speaker defended the use of such loopholes because it recognizes a critical difference between sociological research and the work of the Humanities: research looks at data in order to generalize the information into universal principles while the humanities and arts tend to focus on the particularity of texts and persons.


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The Bethel Community

The subject of Nakamura's documentary, "Bethel: Community and Schizophrenia in Northern Japan," was a group of neuro-divergent and neuro-queer persons living in a small town attached to a hospital and university. For years the hospital treated patients with a variety of psychosocial disabilities, offering institutionalization for many who lived in the facility as well as out patient assistance for those living nearby. It was from this population of outpatients that the Bethel intentional community arouse to promote mutual support and dialog. As the name suggests, Bethel was sponsored and founded by a Church group who wanted to affirm non-privatized, non-medical alternative forms of care in order to compliment and contrast the medical practices of the hospital. Modeled on programs such as Alcoholics Anonymous, Bethel members would meet, share stories, offer assistance and accountability, and consider their relations to society and the wider world. Indeed, outreach and advocacy became a corner stone of the program. Bethel members were eager to show their faces and stories with Nakamura as part of a mutual desire to deepen and spread a more complex understanding and visibility of lives with diverse psychosocial disabilities.

For the film, Nakamura chose to live with the Bethel community and attend meetings. She shared her own personal stories, particularly her experiences of depression. The decision to participate, she explains, came from a desire to witness Bethel from the bottom up (cultural) view rather than from a top down (administrative) perspective. To aid in this commitment, Nakamura did not research psychosocial disorders in any medical archives beyond a basic level of comprehension. She did not want to consciously or unconsciously diagnose any of the community members. Instead, she allowed the individual persons of Bethel to express and define themselves to her through community encounters. Nakamura recounted that at first members of Bethel kept her at arm's distance, habituated to the coming and going of outsider observers. Over time, however, sincere friendships formed as Nakamura made herself vulnerable and dwelled together in the collective life of Bethel.

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Critiques and Benefits

While many academics might be suspicious of non-medical, Christian programs working with disabled communities, Nakamura found numerous positive alternatives that the socio-religious model offers over the privatized medical model. Part of what makes Bethel so beneficial for its members and what allows Bethel to function is that the Japanese government offers people with mental disabilities a living income, housing, and free healthcare. This is unthinkable and hard to duplicate in the United States where social welfare and universal healthcare are hardly comparable, admits Nakamura. Yet other aspects of Bethel are transferable. Rather than drug away the power of those with psychosocial illnesses or incarcerating (or otherwise institutionalizing) them in ways that isolate them and limit their agency (as is prominent in the United States), Bethel stresses social and cultural methods that reaffirm relationships. After persons with psychosocial traits become alienated from friends and family either by symptoms or by medical and legal agencies, Bethel works with the person to help bring them back into community, reestablish social bonds, and creating a sense of family.

Nakamura offered critiques as well. As a "total institution," the Bethel community creates a kind of dependency on its programming. There are few options to take some but not all of the assistance the institution offers. You are either all in or all out. Furthermore, following a kind of "Christianized Buddhism" (of the non-Hindu inflected variety), Bethel promoted a world-view of suffering oriented towards a release into oblivion. Affirming "giving up hope" and an acceptance of a "life of decline," where no matter who bad things are today, they will inevitably get worse, Bethel's more nihilistic philosophy was difficult for Nakamura to embrace positively. Furthermore, the Bethel community remains fairly conservative in its view of gender and sexual politics, limiting the forms of relation and embodiment of its members. Finally, Nakamura explained, the Bethel model is difficult to duplicate due to its ready made population drawn from the hospital's outpatients and inpatients.


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Other Crip/Queer Events at GWU




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Proffessor Karen Nakamura is an American academic, author, filmmaker, photographer and Associate Professor 
of Anthropology and East Asian Studies at Yale University


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"Why I am Bioconservative" with Rosemarie Garland-Thomson


“Who gives dignity? 
Humans or God?"

Rosemarie Garland Thomson
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Pro-Life Disability Politics

On September 17th, 2015, Rosemarie Garland Thomson spoke on "Why I am a Bioconservative" to a packed lecture hall at the George Washington University. The event was coordinated by the GWU English Department as part of its Crip/Queer Studies programing. David Mitchell introduced the speaker, praising her as a foundational figure in Disability Studies, authoring such influential texts as Freakery, Staring: How We Look, and Extraordinary Bodies. In an hour and a half, Thomson spoke on the important but often unspoken alliance between religious conservatism and non-religious disability activists around "Pro-Life" issues, specifically the abortion of fetuses to be born with physical or mental impairments, euthanasia, and the assisted suicide of the disabled.

Historicizing the systematic elimination of disabled bodies, Thomson traced many recent and current practices to the eugenics of the early 20th century, citing proto-holocaust programs in Germany where gas chamber technologies were pioneered through the mass incarceration and killing of peoples with disabilities. While eugenics has since changed names and strategies, the bio-technologies that eliminate or impair socially undesirable lives continue to multiply. Such medical mechanisms target the youngest and oldest groups but cluster around those lives marked as impaired or chronically ill. Critical to the continuation of eugenic ideology are the cultural assumptions and values that encourage society to believe that persons are "better off dead than disabled." 


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Unexpected Allies

By opposing not only the use but the cultural indoctrination of eugenics, disability activists find themselves joining forces with religious conservatives. Thomson contends that while religious and non-religious "bioconservatives" may disagree in first principles, these groups join together in their conclusions. For instance, "dignity" is a key issue within bioconservatives of either ilk. In this context, dignity designates a life worth living and deserving of "moral personhood" (rights and duties) as well as a "quality of life" (well being in medical care, politics, and employment). Religious and non-religious groups may disagree in the source and authority that bestows dignity: humanity or God. Nonetheless,  persons of different belief systems can come together to preserve the dignity of those marked as undesirable: those who are "too expensive" in relation to their social worth.

Despite a history of shared political agendas, the cooperation of religious and disability activism is an uncomfortable and often controversial topic in the University setting. "Using the word 'God' tends to tick off liberal academics," Thomson admits after carefully defining the diversity of those who might be considered bioconservative. In the light of increasingly partisan politics and rhetoric, many liberal scholars overtly or indirectly oppose suggestions that any part of the Pro-Life agenda might be worthy of consideration by non-religious fields - as academia is often imagined. A shift towards less reactivity at words such as "God" or "conservative" as well as a willingness to see reasonable middle grounds or overlaps in Pro-Life and Pro-Choice movements is necessary to critical, thoughtful engagement in the preservation and improvement of disabled lives. Indeed, Thomson admits, the goal of "preserving" rather than "eliminating" lives implicit in disability activism suggests within it a kind of "conservatism" - even as it may be distinguished from religious extremism.


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Rituals of Care

Besides legal and medical initiatives, Thomson stressed the important cultural work of bioconservatism that promote a culture of life. In particular, ritual practices such as the washing of bodies are acts of care common among religious and non-religious communities. Washing in hospitals, elderly care facilities, families by caregivers, as well as the sacramental blessing of children, the sick, and the dead are all examples of rituals that recognize the dignity of the bodies they encounter. Such rituals recognize the dignity of embodied experiences, Thomson argued. Through repetition, rituals directly create the conditions for a quality of life while affirming moral personhood. If washing (including toileting) were more openly a communal practice where the reception of care is a sign of dignity rather than shame, fewer people would be instilled with the belief that they would rather be dead than unable to clean themselves. Fewer people with disabilities, including the elderly, would be associated with wallowing in filth if indeed fewer would be left to wallow. Ritual practices would bond care givers and care receivers, instilling a culture of life in the community.

In her conclusion, Thomson fielded some questions about other fields that share similar values as the disability activists who may have reason to rethink the old opposition to bioconservative politics. One example offered was the case of HIV+ gay men, lesbian, and transgender persons. During the AIDs outbreak of the late 20th century, there developed a similar culture of death where the death of LGBTI communities by the disease were seen as excusable even laudable by those who saw non-normative gender and sexualities as abominations against God or Nature. In this time, images of caregivers washing the sick and dead bodies of AIDs victims became politically charged. Such acts gave dignity of those dying and stated that despite the high cost of care, LGBTI lives were worth preserving. Thomson affirmed that many peoples, especially the subjugated, have reason to reexamine their positions on bioconservativism and work towards creating a culture of life.


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Other Crip/Queer Events at GWU




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Rosemarie Garland-Thomson is Professor of English and Bioethics at Emory University, where her fields of study are disability studies, American literature and culture, and feminist theory. Her work develops the field of critical disability studies in the health humanities, broadly understood, to bring forward disability access, inclusion and identity to communities inside and outside of the academy. She is the author of Staring: How We Look and several other books. Her current book project is Habitable Worlds: Disability, Technology, and Eugenics.



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Monday, July 6, 2015

The New Digital Humanities with M.W. Bychowski


"As tools come under the control of certain persons and not others... disparity develops over who can claim narratives 
of bodily stability and change"

Transliterature Online

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In honor of ThingsTransform.com reaching 100,000 readers

We are hosting a digital humanities forum
showcasing the work of other fantastic young DH scholars

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A History of Transliterature

Transliterature started as two blogs, one documenting the beginning of my graduate work as a Masters student and the second at the start of Ph.D study. The latter incarnation, which became the website you are reading today, aimed at being a public notebook where my various research, writing, and musings could be easily collected and archived. It was a pleasant surprise when my readership, which began in the low double-digits every month, started to incrementally expand. By the second year, I would get more readers in one day that I got in a whole month the previous year. These were no longer just passersby. 
I watched, part in horror, as I saw patterns in the readership. People hung around and came back again for more. Suddenly, I had an audience. My "public notebook" had a public. This meant people were interested in what I was doing in this corner of the internet and with that came an increased responsibility to make it worthwhile.

Over the years, I've taken steps to make the content and the presentation of the website more consistent, pleasing, and useful. Arriving at 100,000 readers, I work even harder to be of service to my growing digital community. This may be small potatoes compared to some the larger, more established scholars, more avid bloggers, and (to be honest) more gifted writers. But as in the classroom, I respect the precious time and attention of each person who turns their head to read or listen to what I am sharing. What this growth tells me is that people share an interest in what excites me (it is interesting stuff!), and that I am getting better at making this interesting stuff available, accessible, and contextualized. In this way, you, my readers, are not only helping to build the website but helping me to be a better digital humanist, scholar, teacher, and (I hope) writer. Thank you for that. And thank you for the many individuals in this community that continue to be my responders, questioners, challengers, teachers, editors, contributors, and friends. This is why I wanted to mark the jump into the 6-digits with a forum on some of the New Digital Humanists that inspire me to do well and do good. 

Now that you have heard from Tawnya Ravy and her Salmon Rushdie Archive, Derek Newman-Stille and his Speculating Canada, and Angie Bennett Segler and her Digital Piers Plowman, I wanted to share a few of the new things here at Transliterature Online and preview some of the things in the works for the future! All of these come in response to ideas and questions presented by my readers and fellow transliterati. A great benefit from more actively integrating Facebook and Twitter was that this increased the conversations between members of the community. Keep on talking, I'm listening! I'm very excited about where we are and where we are going. Let's keep our critical conversations going as we work to make the future that we want, to make Things Transform for the better.



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What's New?


The movement from Transliterature's longtime home on Blogspot.com to an independent URL, www.ThingsTransform.com, marked an extension that was already taking place in the project away from exclusively blog-style posts to hosting additional digital resources. This came in part in response to educators reaching out for more tools to use in the classroom as they began to assign Transliterature as required reading for their seminars. Furthermore, my consulting work continues to bring up interesting projects beyond or alongside academia. What this amounts to is a desire to be more accessible and useful to all those interested in these thoughts, methods and stories.


As an educator, I believe in the tenant: meet people where they are. This is what lead me to the digital humanities - to share my academic scribbles, remembrances, and flights of fancy with a public beyond my personal notebooks and immediate colleagues. The success of these musings has brought requests for the best ways for readers and fellow educators to adapt our online conversations to the classroom. This spurred the development of a pedagogy section to the website where I offer (1) terminology, (2) policies, and (3) introduction forms. Additionally, I share several lesson plans from courses I have taught on transgender, disability, and sexuality in the middle ages.


In the course of my curation of trans literature, I come up against the need for more narratives on transgender that connect the personal with the political. Evidence and discussions of critical topics that need to be addressed in literature are not yet present in public discourse. There are things I know from experience and from conversations within the trans community that are not published, archived, and authorized in scholarly dialogs. Towards this goal of adding narratives that illustrate, evidence, and entertain the details of trans living, I work to expand my memoirs. An added benefit of this enjoyable work is that I get to give honor to the many other persons and stories that have impacted my life. To be a trans person in society is to be a magnet for stories. In our daily goings, society makes us archives, storytellers and nodes for conversations. May discussing the text of my life point beyond me to the important things transforming in the margins.


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Coming Soon...


In the past two years, the Morpheus Database has built up an increasingly massive amount of data on transformation, transgender, and disability in literature. Last year, as part of phase II, the database expanded to include data drawn from non-fiction sources as well. This is key, especially in fields like medieval studies and identity studies where story and theory are inextricable. Furthermore, Mark II moved to a new home on Knack.com where the information could be added, edited, and read by a greater number of participants. At this point, however, this remains limited to a core team. In the future, I am already in conversations on ways to make the information more user-friendly and useful to the public. Mark III aims to provide more data-visualization, a searchable database, and distinct project areas where independent researchers would be able to participate in the building of our knowledge about transgender and disability in the middle ages.


One of the most frequent questions from casual readers to scholars interested in going further into transgender and disability studies is where to start reading. I've composed a few targeted bibliographies as part of my academic community and consultancy. This ran from taking pictures of my bookshelves to sharing more comprehensive lists. Soon I will compose a variety of bibliographies that will help newcomers and more experienced readers to find useful and interesting texts that will help them learn and communicate on these important issues. Let's read together!


In recent years, I've consulted for acting troupes, businesses, churches, and educators on how to build more accessible, welcoming, and critical spaces for a wider diversity of persons. Soon, I will be collecting and expanding this material into workshops on gender, sexuality, and disability. The new program will be geared to a variety of communities and workplaces. These, "Transform Talks" will be available on different levels to suit a host of particular needs. Short, 1-2 hour bootcamps will help orient staff, faculty, and minsters on (1) key language, (2) best practices, and (3) context and background in targeted communities. Longer day to weekend long seminars will also be available where team members can become better oriented and trained in diversity, including (1) getting to know important stories and histories, (2) workshopping situations, and (3) transforming social and physical spaces to be safe and fruitful for a wider range of lives.


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